Member Privacy is Our Priority
Coriell Life Sciences is fully committed to protecting the privacy of our clients and your members. We take every precaution to maintain the security of DNA samples and the data they generate.
- Coriell Life Sciences is HIPAA-compliant. HIPAA, the Health Insurance Portability and Accountability Act of 1996, mandates that we meet strict standards for the electronic exchange, privacy, and security of health information.
- All personally-identifying information is stripped from DNA samples and stored in a separate database. The DNA samples and the data they generate are tracked using bar-code IDs.
- Most of a DNA sample is consumed in the process of testing. Any remaining sample is destroyed.
- All results are confidential. Data is held by CLS and shared only with the reviewing pharmacist, the individual tested, and their doctor. Program administrators are provided only with overall metrics to monitor the success of the initiative.
- Individuals always have the right, at any time, to decide where their data is sent and whether or not it can be stored.
- The data has multiple layers of encryption. CLS also “salts” the data, sprinkling random data within the actual data.
- CLS is not sequencing the entire genome. We have 3.2 billion base pairs in our DNA but very little of that has been found to be associated with drug-gene interactions. We are interested in just 62 to 120 of those 3.2 billion base pairs. There is nothing uniquely identifying about a specific person within that information.
- The part of the genome we are sampling will not tell us whether you are likely to get a particular disease.
- The Genetic Information Nondiscrimination Act (GINA) mandates that an individual’s genetics cannot be held against them by either health insurers or employers.