Your Privacy is Our Priority
At Coriell Life Sciences, your privacy is our priority — we are committed to protecting the confidentiality of our clients and their members. We take every precaution to maintain the security of DNA samples and the data they generate. Every person that we test always has the right, at any time, to decide where their data is sent and whether or not it can be stored.
What We Analyze
Coriell Life Sciences does not sequence an individual’s entire genome — we study the small fraction that affects drug-to-gene interactions. Each person has 3.2 billion base pairs in their DNA, but very little of those base pairs have been found to be associated with drug-to-gene interactions. In fact, within the small fraction that we analyze —no more than 120 out of 3.2 billion base pairs— there is nothing uniquely identifying about a specific person, and the small part of the genome we sample will not tell us whether you are likely to get a particular disease.
How We Secure It
Coriell Life Sciences is HIPAA-compliant. HIPAA, the Health Insurance Portability and Accountability Act of 1996, mandates that we meet strict standards for the electronic exchange, privacy, and security of health information. Further, the Genetic Information Nondiscrimination Act (GINA) mandates that an individual’s genetics cannot be held against them by either health insurers or employers.
We strip all personally-identifying information from DNA samples and store this in a separate database. The DNA samples we collect and the data they generate are tracked using bar-code IDs. Almost all of person’s DNA sample is consumed during the testing process, and any remaining DNA sample is destroyed. The data we analyze has multiple layers of encryption. Coriell Life Sciences also “salts” the data, sprinkling random data within the actual data.
All results are confidential. Data is held by Coriell Life Sciences and shared only with the reviewing pharmacist, the individual being tested, and that person’s designated healthcare provider. Program administrators are provided only with overall metrics to monitor the success of the initiative.